Insights from and limitations of data linkage studies: analysis of short-stay urgent admission referral source from routinely collected Scottish data
Journal Article
Dick, S., Kyle, R., Wilson, P., Aucott, L., France, E., King, E., …Turner, S. W. (in press)
Insights from and limitations of data linkage studies: analysis of short-stay urgent admission referral source from routinely collected Scottish data. Archives of Disease in Childhood, https://doi.org/10.1136/archdischild-2022-324171
Introduction This study identified the referral source for urgent short-stay admissions (SSAs) and compared characteristics of children with SSA stratified by different referr...
A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why?
Journal Article
Malcolm, C., & Knighting, K. (2022)
A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why?. BMC Palliative Care, 21, https://doi.org/10.1186/s12904-022-00921-8
Background: Children’s palliative and end of life care is underpinned internationally by a commitment to provide care and support in the family’s preferred place, which may in...
Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review
Journal Article
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. (2021)
Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review. Journal of Long-Term Care, 2021, 230-240. https://doi.org/10.31389/jltc.66
The COVID-19 pandemic has reinforced the need to ensure that strategic and operational approaches to retain high quality, resilient frontline care home workers are informed by...
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents
Journal Article
Malcolm, C., & Knighting, K. (2021)
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents. Palliative Medicine, 35(8), 1602-1611. https://doi.org/10.1177/02692163211023300
Background:
End-of-life care for children with life-shortening conditions is provided in a range of settings including hospital, hospice and home. What home-based, end-of-life...
Written Evidence to Independent Review of Adult Social Care Scotland
Report
Johnston, L. Written Evidence to Independent Review of Adult Social Care Scotland. Scottish Government)
Johnston, L. Written Evidence to Independent Review of Adult Social Care Scotland. Scottish Government
• The evidence presented here relates to four research studies conducted in relation to workforce resilience, burnout and support around death and dying in the care home secto...
Avoiding Burnout of the Care Home Workforce During the COVID-19 Pandemic and Beyond: Sharing National Learning and Local Initiatives
Journal Article
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. (2021)
Avoiding Burnout of the Care Home Workforce During the COVID-19 Pandemic and Beyond: Sharing National Learning and Local Initiatives. Age and ageing, 50(Suppl. 1), i12-i42. https://doi.org/10.1093/ageing/afab030.62
Introduction
COVID-19 in care homes has heightened the risk of staff burnout, undermining already problematic staff retention and low morale. There has been an associated prol...
Avoiding Burnout of Care Home Workforce
Report
Johnston, L., & Malcolm, C. (2021)
Avoiding Burnout of Care Home Workforce. Edinburgh: CSO
This small study focused on the resources available and used to support the wellbeing and mental health of frontline care workers (FCW) in care homes for older people. It had ...
Avoiding burnout of the care home workforce during the COVID-19 pandemic and beyond: sharing national learning and local initiatiatives
Presentation / Conference
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. (2020, November)
Avoiding burnout of the care home workforce during the COVID-19 pandemic and beyond: sharing national learning and local initiatiatives. Poster presented at BGS Autumn Meeting 2020, Online
What are the components of an effective model of home-based end of life care for children and families?
Presentation / Conference
Malcolm, C., & Knighting, K. (2020, October)
What are the components of an effective model of home-based end of life care for children and families?. Paper presented at 2020 International Congress on Palliative Care, Montreal, Canada
Objectives: To assess the effectiveness of a home-based end of life care service delivered via a partnership model by two organisations as perceived by families who have acces...
Home-based end of life care for children and their families – a systematic scoping review and narrative synthesis
Journal Article
Malcolm, C., Katherine, K., & Charlotte, T. (2020)
Home-based end of life care for children and their families – a systematic scoping review and narrative synthesis. Journal of Pediatric Nursing, 55, 126-133. https://doi.org/10.1016/j.pedn.2020.07.018
Abstract
Problem: There is a growing international drive to deliver children’s palliative care services closer to home. Families should have choice of where end of life (EOL)...