44 results

A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study

Journal Article
Malcolm, C., Gibson, F., Adams, S., Anderson, G., & Forbat, L. (2014)
A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study. Journal of Child Health Care, 18(3), 230-240. https://doi.org/10.1177/1367493513485825
Mucopolysaccharidoses (MPS) and Batten disease are rare life-limiting conditions (LLCs) characterised by progressive and permanent physical and cognitive decline. The impact o...

The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals

Report
Malcolm, C., Adams, S., Anderson, G., Gibson, F., Hain, R., Morley, A., & Forbat, L. (2011)
The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals. Stirling: University of Stirling
This report documents a mixed-method study examining the symptom profile and family experience of two rare life-limiting conditions. Data was collected across the UK, using a ...

Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families

Journal Article
Malcolm, C., Forbat, L., Anderson, G., Gibson, F., & Hain, R. (2011)
Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families. Palliative Medicine, 25(4), 357-364. https://doi.org/10.1177/0269216310391346
This paper reports on data from the initial phase of a UK-wide study exploring life-limiting conditions (LLCs) in children where, because of their rarity, little is understood...

Commentary on Rydstrom I, Dalheim-Englund A-C, Holritz-Rasmussen B, Moller C & Sandman P-O (2005) asthma quality of life for Swedish children

Journal Article
Ring, N., & Malcolm, C. (2007)
Commentary on Rydstrom I, Dalheim-Englund A-C, Holritz-Rasmussen B, Moller C & Sandman P-O (2005) asthma quality of life for Swedish children. Journal of Clinical Nursing, 16(9), 1766-1768. https://doi.org/10.1111/j.1365-2702.2006.01607.x
No abstract available.

Helicobacter Pylori in children is strongly associated with poverty

Journal Article
Malcolm, C., MacKay, W. G., Shepherd, A., & Weaver, L. T. (2004)
Helicobacter Pylori in children is strongly associated with poverty. Scottish Medical Journal, 49(4), 136-138. https://doi.org/10.1177/003693300404900406
Background and Aims: To examine the association between prevalence of H. pylori colonisation and social deprivation in a sample of children investigated in hospital. Methods: ...

Promoting the use of Personal Asthma Action Plans: a systematic review

Journal Article
Ring, N., Malcolm, C., Wyke, S., MacGillivray, S., Dixon, D., Hoskins, G., …Sheikh, A. (2007)
Promoting the use of Personal Asthma Action Plans: a systematic review. Primary Care Respiratory Journal, 16(5), 271-283. https://doi.org/10.3132/pcrj.2007.00049
Objectives: To investigate how best to encourage health professionals to promote, and for people with asthma to use, asthma action plans. Methods: Systematic review. Randomise...

Childhood H. pylori: disappearing disease or chronic infection?

Journal Article
Shepherd, A., Malcolm, C., Mackay, W. G., & Weaver, L. T. (2004)
Childhood H. pylori: disappearing disease or chronic infection?. British Journal of Community Nursing, 9(5), 201-205. https://doi.org/10.12968/bjcn.2004.9.5.12888
Helicobacter pylori is one of the commonest chronic bacterial infections worldwide. It is acquired during childhood and its persistence has implications for health in later li...

Intrafamilial genotyping of helicobacter pylori from faecal DNA

Journal Article
McMillan, M., MacKay, W. G., Williams, C. L., Shepherd, A. J., Malcolm, C., & Weaver, L. T. (2011)
Intrafamilial genotyping of helicobacter pylori from faecal DNA. Gastroenterology Research and Practice, 2011, https://doi.org/10.1155/2011/491035
Helicobacter pylori infection, often acquired in early childhood, is a global cause of undernutrition, gastritis, peptic ulcer disease and gastric carcinoma. This study tested...

Maternal docosahexaenoic acid supplementation during pregnancy and visual evoked potential development in term infants: a double blind, prospective, randomised trial

Journal Article
Malcolm, C. A., McCulloch, D. L., Montgomery, C., Shepherd, A., & Weaver, L. T. (2003)
Maternal docosahexaenoic acid supplementation during pregnancy and visual evoked potential development in term infants: a double blind, prospective, randomised trial. Archives of disease in childhood. Fetal and neonatal edition, 88(5), 383F-390. https://doi.org/10.1136/fn.88.5.f383
Aim: To test the hypothesis that maternal docosahexaenoic acid (DHA) supplementation during pregnancy enhances maturation of the visual evoked potential (VEP) in healthy term ...

What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents

Journal Article
Malcolm, C., & Knighting, K. (2021)
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents. Palliative Medicine, 35(8), 1602-1611. https://doi.org/10.1177/02692163211023300
Background: End-of-life care for children with life-shortening conditions is provided in a range of settings including hospital, hospice and home. What home-based, end-of-life...
4 results

Avoiding Burn Out of Care Home Workforce: sharing national learning and local initiatives that support resilience and retention during the COVID-19 pandemic

2020 - 2021
A key issue arising from the Covid-19 pandemic for Care Homes is heightened risk of staff burn out, further undermining already problematic staff retention in this sector. This short, high impact stud...
Funder: Chief Scientists Office | Value: £9,317

Scoping exercise to inform the development of an education strategy for the Children’s Hospice Across Scotland (CHAS)

2017 - 2019
The aim of the scoping exercise is to inform the development of an education strategy for CHAS relating to the delivery of palliative care for babies, children and young people (BCYP) and their famili...
Funder: Children's Hospice Association Scotland | Value: £23,203

An evaluation of the Care 24 service

2018 - 2022
The overall aim of the evaluation is to explore the experience and assess how successfully the Care 24 service meets the intended aims of the service initiative from the perspectives of families who h...
Funder: NHS Lothian | Value: £43,255

Slowing the flow of zero day admissions to hospital: data linkage to inform intervention prioritisation along paediatric referral pathways

2019 - 2021
The number of children admitted to Scottish hospitals continues to rise, and this is due to cases admitted and discharged on the same day (“zero day admissions”). We do not currently know how best to ...
Funder: Chief Scientists Office | Value: £19,237

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