A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why?
Journal Article
Malcolm, C., & Knighting, K. (2022)
A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why?. BMC Palliative Care, 21, https://doi.org/10.1186/s12904-022-00921-8
Background: Children’s palliative and end of life care is underpinned internationally by a commitment to provide care and support in the family’s preferred place, which may in...
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents
Journal Article
Malcolm, C., & Knighting, K. (2021)
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents. Palliative Medicine, 35(8), 1602-1611. https://doi.org/10.1177/02692163211023300
Background:
End-of-life care for children with life-shortening conditions is provided in a range of settings including hospital, hospice and home. What home-based, end-of-life...
What are the components of an effective model of home-based end of life care for children and families?
Presentation / Conference
Malcolm, C., & Knighting, K. (2020, October)
What are the components of an effective model of home-based end of life care for children and families?. Paper presented at 2020 International Congress on Palliative Care, Montreal, Canada
Objectives: To assess the effectiveness of a home-based end of life care service delivered via a partnership model by two organisations as perceived by families who have acces...
Providing home-based end of life care for children and their families: a realist evaluation of the Care 24 Lothian service
Presentation / Conference
Malcolm, C., & Knighting, K. (2020, March)
Providing home-based end of life care for children and their families: a realist evaluation of the Care 24 Lothian service. Paper presented at Together for Short Lives - Conference 2020: Time for Change?, Manchester, UK
Background - The drive to ensure end of life care and death occurs in a child and families’ preferred setting, be that home, hospice or hospital, has been set by policy makers...
Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review
Journal Article
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. (2021)
Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review. Journal of Long-Term Care, 2021, 230-240. https://doi.org/10.31389/jltc.66
The COVID-19 pandemic has reinforced the need to ensure that strategic and operational approaches to retain high quality, resilient frontline care home workers are informed by...
Avoiding Burnout of the Care Home Workforce During the COVID-19 Pandemic and Beyond: Sharing National Learning and Local Initiatives
Journal Article
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. (2021)
Avoiding Burnout of the Care Home Workforce During the COVID-19 Pandemic and Beyond: Sharing National Learning and Local Initiatives. Age and ageing, 50(Suppl. 1), i12-i42. https://doi.org/10.1093/ageing/afab030.62
Introduction
COVID-19 in care homes has heightened the risk of staff burnout, undermining already problematic staff retention and low morale. There has been an associated prol...
Integrating environmental health into nursing and midwifery practice
Journal Article
Watterson, A., Thomson, P., Malcolm, C., Shepherd, A., & McIntosh, C. (2005)
Integrating environmental health into nursing and midwifery practice. Journal of Advanced Nursing, 49(6), 665-674. https://doi.org/10.1111/j.1365-2648.2004.03340.x
Aim. With the recognition that environmental health has relevance to all nursing and midwifery activities, the aim of this paper is to discuss nurses’ and midwives’ past and ...
Supporting the resilience and retention of frontline care workers in care homes for older people: A scoping review and thematic synthesis
Working Paper
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. Supporting the resilience and retention of frontline care workers in care homes for older people: A scoping review and thematic synthesis)
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. Supporting the resilience and retention of frontline care workers in care homes for older people: A scoping review and thematic synthesis
The COVID-19 pandemic has reinforced the need to ensure that strategic and operational approaches
to retain high quality, resilient frontline care home workers, who are not re...
Children's understanding of cancer and views on health-related behaviour: a ‘draw and write’ study: Children's understanding of cancer and health behaviours
Journal Article
Knighting, K., Rowa-Dewar, N., Malcolm, C., Kearney, N., & Gibson, F. (2011)
Children's understanding of cancer and views on health-related behaviour: a ‘draw and write’ study: Children's understanding of cancer and health behaviours. Child: Care, Health and Development, 37(2), 289-299. https://doi.org/10.1111/j.1365-2214.2010.01138.x
Background
Few studies have explored young children’s understanding of cancer and health-related behaviours yet this is essential to develop health promotion initiatives that...